New wetroom and bedroom will help Daisy’s independence – and support her family too
Daisy is a 6-year-old child with profound disabilities. At three months old, she was diagnosed with a rare genetic condition called KCNA1 which causes severe epilepsy, skeletal issues, global development delay and emotional issues. Additionally, she needs to be ventilated via a tracheostomy 24/7.
The Axis Foundation was delighted to contribute £2,223.45 towards creating a downstairs bedroom and wet room to help Daisy to live safely and with greater independence at home.
Thanking the Foundation her mother, Fiona, said: “Thank you so much for the good news!”
Explaining the difference a downstairs bedroom and wetroom will make for Daisy, Fiona continued:
“Daisy will be able to spend more time with her family instead of being confined to her upstairs bedroom where she needs humidified ventilation to make it easier for her to breathe when she is poorly.
“As Daisy is getting older it is making it harder to carry her up the stairs. We looked at installing a through floor lift but unfortunately Daisy’s bedroom is not big enough to allow this – and as she gets older she needs a bigger bed.
“We are extremely positive as a family and focus on the things we can do rather than the things we cannot do. Daisy’s story is a whirlwind from the day she became poorly to where we are at right now.”
The story continues
The Trustees of the Axis Foundation made a further donation in 2025 of £4,000 to contribute to the works, specifically for to provide a Soakaway and Block Paving, both required by Building Control.
“That is amazing – thank you from the bottom of our hearts for all of the support, you have helped so very much and we are so grateful”
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