Care

Brenda Gains Better Quality of Life

Our donation provides a wet room – plus privacy, dignity, independence and better quality of life for Brenda

As a consequence of Brenda’s major health issues, she is unable to bathe without assistance. Lifting her legs into the bath causes her too much pain. But thanks to the Foundation’s donation of £6,280, Brenda now has a wet room which will give her the privacy and independence she needs.

“I would like to thank everyone who was involved at Axis that has made this happen. You have made one very happy woman. This has meant so much to me and I appreciate all the hard work that has gone into making my wet room just so I can have a bit of dignity and independence brought back into my life. I would just like to thank Mark, Anthony and Matt for all of their hard work in making my wet room a reality. They have worked so hard to make my life so much easier. Thank you again from the bottom of my heart” – Brenda

Brenda’s Story

Two months following Brenda’s 50th Birthday in 2011 she fell ill with flu-like symptoms. Within a month she was unable to walk without the aid of a walking stick. Soon she had to use a walking frame, and her mobility continued to deteriorate so she was unable to leave the house alone or without the aid of a wheelchair/electric scooter. She couldn’t continue at her job in a pharmaceutical factory because walking aids are not allowed on the factory floor.

Brenda has been through years of rigorous tests. But sadly her condition continues to deteriorate with no official diagnosis. She now has limited movement in her  body and is constantly in pain, taking multiple medications.

There is very little anyone can do to make Brenda’s condition any better at the moment. Bbut there are ways of improving her quality of life dramatically. We all take jumping in the shower for granted. But for Brenda, installing a new wet room, thanks to the Foundation, has given her some  independence and most importantly restored her dignity and given her a better quality of life generally too.

Lorrae Mannering, Commercial Manager here at Axis, asked the Axis Foundation to help her aunt Brenda and we were delighted to support her application.

 

 

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Care

MS Therapy Centre (NW)

Mobility for MS Sufferers – and their carers too – at MS Therapy Centre

Our donation of £3,173 helped MS Therapy Centre (NW) purchase a new Raizer II Chair. The Raizer II emergency lifting chair helps fallen people get back on their feet with ease. And, as it only needs one person to work it, the specialist chair helps the carers at the Centre too.

“People like you at the Axis Foundation mean we can provide the best for all our members and give them peace of mind. If someone should fall in our centre we have the equipment to safely get them up. Thank you Axis Foundation for the donation. It means the world to all of us here at the MS Therapy Centre (NW)” –  Sean Halsall Fundraiser

More about our donation

Lockdowns as a result of the Pandemic mean that MS Therapy Centre members have not been active for the past 12 months. Some have become physically unstable. Our donation will provide immediate and long term  support to members particularly after a fall – and carers too.

More about the MS Therapy Centre

Established in 2004, the MS Therapy Centre (NW) provides a wide range of therapies and services in a caring and supporting environment to enrich the lives of their 400 members and to limit the effects of MS on sufferers.

And there’s more here

 

 

 

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Keeping kids safe with OK OKCare

OK Our Kids

Keeping children safe

Working with the police, OK Our Kids (OKOK) created Watch Out! and Mistakes and Ladders. The book and board game help young children deal confidently with the challenges of keeping safe at home, at school and in the community.

The Axis Foundation donated £1,000 to help fund printing costs. Our Trustees were impressed by the clear benefits to young children today and to future generations.

“Your wonderful donation has already been spent on producing more product. Rest assured, monies made from sales goes directly into buying more of our wonderful “Watch Out!” books and “Mistakes and Ladders” board games. We thank you from the bottom of our hearts. Your donation WILL make a HUGE difference to young people’s lives” – Tony and Lynn Bartley, Founders

More about Watch Out!/Mistakes and Ladders

Aimed at keeping children safe, the book and board game teach children DOs and DON’Ts, the right way to behave and how to lead by example. Both encourage families and schools to discuss safety openly.

OKOK produced Watch Out! books and Mistakes and Ladders board games for Primary schools in Buckinghamshire, Oxfordshire, Berkshire and Devon and Cornwall. Buckinghamshire Council, Thames Valley Police and City of London Police have endorsed both products as have charities Barnardo’s and the NSPCC.

Here’s what the teachers say

“The Watch Out! books are excellent and cover many topical issues relevant to our children’s learning and the primary curriculum. It is tricky to approach some of these topics. And the book serves as a great starting point at a level that is appropriate for primary aged children” – Cags Gilbert, Head Teacher, Constantine Primary School

“The Watch Out! kids books are a super resource” –  Jules Jenkin, Head Teacher, Mabe School

And there’s more!

Find out more about OK Our Kids here 

 

 

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Girl standing in bedroomCare

Room for Justice

We create a safe, warm space for a friend in need – a Room for Justice!

Clare Payne, Resident Liaison Officer at Axis, wrote to the Axis Foundation to ask for help on behalf of her friend Justice.

 “Justice is the sole carer for her nan, grandad and her mother who is blind. She is the kindest person who never complains about anything. She always puts everyone else first and I have never known her to ask for anything.”

“Justice can only work part time as she needs to be on hand for simple tasks, such as placing toothpaste on the toothbrush, cooking dinner, or picking up dropped items from the floor. Justice will never be able to go on holiday without her mother, never has a day off and will likely not be able to afford to move into her own property due to financial restraints of working only part time. As she is currently being furloughed , money is even tighter than it ever has been.”

Clare asked if the Foundation could help improve Justice’s bedroom, to make it a place where her friend could relax, away from the stresses of her everyday life. And the Foundation was glad to help both Clare and Justice. For the threadbare neglected bedroom we purchased a brand-new bed, bedding, curtains, poles and carpet. And Axis’ own people, including our Apprentices, decorated Justice’s room and improved the lighting too.

“The transformation has been incredible. Justice is so grateful for the help and support of everyone. I am truly grateful to the Foundation for reminding Justice that good things happen to good people and that her hard work every single day does not go unnoticed.

“That was the message I was trying to give her, and we have certainly achieved that,” says Clare.

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Child in grey Hypo Hounds t-shirt and black dogCare

Hypo Hounds

Our helping hand to Hypo Hounds buys a specialist Diabetic Alert Assistance dog

“One sniff at a time” Hypo Hounds save the lives of children affected with Brittle Type 1 Diabetes every day. And our donation of £2,700 will purchase and feed a puppy and also cover its insurance.

“The wonderful donation by the Axis Foundation will enable us to purchase a puppy for a child, insure it and feed it for the first year of its life. Without this funding we would have had to temporarily disappoint a child that is in desperate clinical need. We are extremely grateful” – Mrs Jane Pearman FRSM, Chief Executive and Founder

CASE STUDY Ruby the Hypo Hound

“My daughter Chloe might not be here now if it wasn’t for Hypo Hound Ruby. During a recent sickness bug Ruby began to panic! She is usually such a calm dog, she would not stop alerting. We tried to control Chloe’s bloods as best we could at home, but we were not able to keep her fluid intake up. Ruby knew this and Chloe was at serious risk of falling into DKA. We listened to Hypo Hound Ruby, trusted that something wasn’t right and sought medical advice. Chloe was taken into hospital and placed onto a drip until her vomiting bug ended.

“Chloe and Ruby are the best of friends and are inseparable. Ruby is just amazing and we love her to bits” – Kathy (Chloe’s mum)

More about Hypo Hounds

Type 1 Diabetes effects 29,000 people in the UK. And 20% of those have this rare form, Brittle Type 1 Diabetes, for which there is no known cause and there is no cure. And every day, children with Brittle Type 1 Diabetes are at risk of collapsing, failing into a Diabetic coma and potentially dying in their sleep.

Because Hypo Hounds are trained to alert to parents/owners of the subtle changes in a child’s blood sugars they can help to prevent potentially life-threatening hypoglycaemic attacks, allowing parents to treat the child and mitigate the risk of hospital admissions.

Early detection of these changes in children with Brittle Type 1 Diabetes also means that the child’s long-term health is improved. Early detection reduces risk of renal failure, loss of sight and amputation.

Hypo Hounds’ amazing dogs are beating all the current technology by a precious 15 minutes, providing comfort, peace of mind and relief to parents and families.

More here!

There is more about Kent-based charity Hypo Hounds here.

 

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Girl on Scooter for MS SufferersCare

Mobility Scooters for MS sufferers

Buying mobility scooters for MS sufferers.

A good friend spotted that MS sufferer Alice Tilley would benefit from a mobility scooter. She applied to the Axis Foundation for help on her friend’s behalf.

About Alice

Alice Tilley, 28, has an aggressive form of relapse and remitting MS. When she has a relapse Alice is unable to walk unaided. She cannot drive and is totally reliant on her parents to get her around.

Applying for a friend

Claire, Alice’s friend, also suffers from MS.

After she applied to us, the Axis Foundation bought a lightweight mobility scooter for Claire. And so Claire applied for one for her friend Alice too.

“I have limited mobility and the mobility scooter that the Axis Foundation purchased for me gave me a huge amount of independence. A mobility scooter will help Alice too,” says Claire.

Thanks from Alice

And the Axis Foundation was delighted to help Claire’s friend.

Thanking us for our donation of £2,175 Alice said: “I was able to choose the world’s lightest mobility scooter which I can pack into our car. This is going to make such a difference to my independence and the management of my mobility. Thank you Axis Foundation.”

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Neuromuscular physiotherapist for baby VinnieCare

Funding Neuromuscular Physiotherapist for Baby Vinnie

Axis Foundation funds Neuromuscular Physiotherapist for baby Vinnie

Vinnie James was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 at nine weeks old.

The progressive disease affects motor functions including the muscles used for swallowing and breathing. SMA Type 1 normally sees children passing away from respiratory failure before the age of two.

Vinnie, now five years old (in 2020), has been on a new drug called Spinraza for over four years. He is slowly starting to gain more physical strength.

Parents Luke and Kelly work daily with him at home and at school. The are ensuring that he is building new muscle strength to complement the medicine. They use specialist equipment and have the help of a Neuromuscular Physiotherapist.

The Axis Foundation has previously donated £6,000 to purchase a Permobil Koala Power chair to provide Vinnie with some mobility and independence. You can read more here.

The latest donation of £4,400 funds a year’s physiotherapy with a Neuromuscular Physiotherapist for Vinnie.

“The money from The Axis foundation has ensured that Vinnie has access to the best possible physiotherapy. It means that we can continue working hard on making our little boy stronger and he can keep smashing SMA. Thank you” – Luke and Kelly James

 

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funding physiotherapy for Kasia's babyCare

Funding physiotherapy for baby Antoni

Helping provide physiotherapy for baby after diagnosis of neurological cyst

Kasia Ulanowska gave birth to her long-awaited son Antoni in week 35 of an extremely difficult pregnancy, complicated by multiple medical emergencies.

Antoni was born tiny, weighing only 1.7kg (3.7lbs). He was rushed to intensive care and spent a month in hospital before he could come home.

Kasia was concerned about Antoni’s physical development. And a diagnosis of a neurological cyst, a brain abnormality which causes hypertonia (increased muscle tone) put him at a very high risk of abnormal development and developmental delay.

Ruth Bayliss, Highly Specialist Paediatric Physiotherapist and Clinical Director of The Children’s Physio LTD, recommended early intervention and regular physiotherapy treatment saying:

“His current physical presentation can be significantly improved with the help of physiotherapy.”

Long waiting times in the NHS forced Kasia to consider private physiotherapy. So, she asked the Axis Foundation for help to fund the treatment.

The Trustees of the Axis Foundation were delighted to help Kasia. They agreed to fund 18 months physiotherapy treatment donating £5474.

Antoni’s physiotherapist reports: “Antoni has done incredibly well over the last year and continues to respond to physiotherapy well and meet his developmental targets.”

Kasia says: “Knowing that we can help him catch up but not being able to afford was just heart breaking. We had not even dreamed about half what we have been donated, we will be forever grateful.”

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Gift boxes for seriously ill children in hospitalCare

Tyler’s Trust

With our donation, Tyler’s Trust bought gifts and equipment for seriously-ill children in hospital

And our donation gave this charity gave even greater help than we anticipated during COVID-19.

Their Funding Support Officer, Juliet Stallard, explains how our donation helped them give a little bit extra to local children and their families during the pandemic.

“We would like to say a huge thank you to the Axis Foundation. You kindly donated £1,500 to Tyler’s Trust in 2019 towards essential equipment to support seriously-ill children in hospital. The equipment, DVDs and TVs you provided helped children in 2019. And when COVID hit in 2020, many of the children had to lock down in hospital. So the extra provisions you helped us with helped those children in local hospitals who were unable to get out of bed.

“It’s been an unprecedented year for us all. We have strived to support our families with sick and ill children through this year in as many ways as was possible.

“In May, we started to deliver our support boxes by post and hand deliver at a social distance to those that we could reach. These were specifically to help with mental stimulation activities (for the children) and hygiene and self-care packs (for all the family) in COVID lockdown. We have also supported new families with our core service support packs, gift boxes and support to local hospitals’ children’s wards (parental pack for overnight stays). We reached over 30 families.”

In 2020 the Axis Foundation made a further award to Tyler’s Trust, purchasing I-pads and tablets to help seriously-ill children in hospital.

More about Tyler’s Trust

Young Tyler underwent extensive surgery and radio therapy following a diagnosis of a brain tumour. During his long time in care, the thoughtful 12-year-old bought two young fellow patients a comic and a toy.

Their delighted reaction inspired Tyler. So, in 2014, he founded the charity Tyler’s Trust giving a Gift Box to patients who have been diagnosed with a brain tumour or are suffering from a life threatening condition.

Each box contains cheering gifts including a teddy, a bandana, a mug, pens, sweets and a voucher.

A local charity, supporting local children, West Sussex-based Tyler’s Trust, also supports siblings and family members at a time when hope is often lost or fading. As a twin Tyler knows how hard it can be for brothers and sisters of sick children. And, as well as giving gift boxes to family members, Tyler’s Trust also provides additional backup including through an annual family support day.

Tyler has been nominated for several awards in recognition of his courage. In 2018, he received a British Empire Medal (BEM) in the Queen’s Birthday Honours List for his work. He says that his greatest achievement is the creation of Tyler’s Trust, whose patron is TV and radio presenter Fearne Cotton.

There’s more about Tyler’s Trust here

 

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Young disadvantaged children sailingCare

The Ahoy Centre

Donation to The AHOY Centre supports vulnerable children

The Axis Foundation donated £3,750 to The AHOY Centre’s Time2Talk programme. Time2Talk provides 1-2-1 emotional and psychological support for vulnerable children.

Many children at AHOY come from chaotic home-lives, with little guidance. And these Time2Talk 1-2-1 sessions improve teamwork, self-esteem and leaderships skills.

“On behalf of everyone at AHOY, thank you for believing in our work and helping us to continue to have a real positive impact on people’s lives.

“We have now added our mentoring Time2Talk services to all our main programmes. We will continue to embed this vital piece of support into all additional programmes.

“During the period of your grant, The Time2Talk programme was led by AHOY’s Lead Mentor and qualified Psychologist who worked with a team of qualified mentors. The mentors were also instructors on the activity programme.

“They provided emotional and psychological support to our vulnerable children whilst delivering “on the job” mentoring. And they could recognise any behavioural changes and react appropriately during sessions to support them”  – Danny O’Sullivan, Fundraising Manager

More about Ahoy

The AHOY Centre is based in Deptford, one of London’s most deprived areas. The charity enables disadvantaged and disabled young people to take part in water-based activities and train in life skills.

And there’s more about  AHOY here!

Lockdown update

During Lockdown, AHOY’s virtual hub provided online cooking, nautical theory, drama and fitness sessions for members. And AHOY also cooked and delivered over 1,600 hot meals for vulnerable families. Plus, they provided Covid Capsule activity packs to keep members progressing and engaged.

“As parents of an adult with autism and a learning disability, Lockdown was extremely difficult for us as a family. We were very concerned about T’s mental health. All his activities stopped and his normal routines ended. So we were immensely grateful to AHOY for keeping in touch with the Sailability students and for all the effort that went into reopening the centre” – AHOY parent

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