Care

Mollie’s story

Helping care for a small child with Ataxia Telangiectasia (Louis-Bar syndrome)

Little Mollie has Ataxia Telangiectasia, a devastating, rare, inherited childhood neurological disorder. It affects the part of the brain that controls motor movement and speech.

The disease is also known as disease Louis-Bar syndrome. It is complex and additionally affects the lungs and immune system as well as causing sensitivity to radiation and increased risk of cancers.

It is also progressive and there is no cure. Decline starts increasing from age of five and little Mollie has recently turned six. It is most likely that is she will need a wheelchair by the age of 10.

Moved by the plight of Mollie, the Trustees of the Axis Foundation agreed to a donation of £11,133. This will purchase her a Mollii suit (designed to relax muscles through neurostimulation), a Gallileo vibration board (to help with muscle tone) and also some specialist physiotherapy.

Emily Barker, Mollie’s mother, said: “Thank you so much for your email – we are over the moon that Mollie’s application was successful and so grateful she will now have access to a Mollii suit and Galileo board along with the specialist therapy.

“Our little girl deserves the best opportunities and chance in life so thank you so much for helping to make this happen – it really means the world to us.”

“We realise that right now without a treatment available the best options for Mollie are to support her strength and abilities with specialist therapies. We are therefore currently planning a Mollie’s Miracle Family Funday in August – this will be to raise money directly for Mollie to take part in extra therapies such as horse-riding therapies and hydrotherapy to ensure we are doing all we can to keep her muscles strong and help fight the symptoms of this devastating disease.”

Molllie’s parents run Mollies Miracle, with support of friends and family, raising funds to research into Ataxia Telangiectasia. More information here

You can donate to Mollie’s Just Giving page here

Mollie’s Miracle Family Funday, Cliffe Woods Primary School, View Road, Kent ME3 8UJ – 12-4pm, Sunday 6 August

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Group of people round table HeadwayDisability

Headway West London

Supporting brain injury survivors

Headway West London helps brain injury survivors and their families, helping them reconnect with their local communities.

The Axis Foundation’s donation of £3783 will support their computer/ mobile contact work including one-to-one support, online workshops, educational support work and health talks.

“We are very grateful to all at the Axis Foundation for their kind donation. This will assist us in providing our linkworkers with the best possible infrastructure to carry out their work with our members as efficiently as possible, and therefore enable us to support as many people as possible. Thank you from us all” – Laura Murphy, Chair of Trustees

More about Headway West London

A brain injury can happen to anyone: through a fall, a road accident, a sporting incident, an assault, a tumour or haemorrhage. Acquired brain injury is often known as the hidden disability. Survivors are often lonely, isolated, bewildered and very distressed by the sudden and dramatic changes to their lives.

Affiliated with Headway – the brain injury association, Headway West London helps ensure vulnerable, isolated brain injured survivors do not fall through the net, supporting them through one-to-one sessions, targeted training pathways, return to work support as well as health and wellbeing sessions, in-person and online.

They work in the west London boroughs of Ealing, Hounslow, Hammersmith & Fulham, Kensington & Chelsea, and Westminster and have established close links with St Mary’s Hospital Paddington and Charing Cross hospitals, Hammersmith trauma clinics and Brain Odysseys, a performance arts intervention group designed with people living with brain injury to support recovery through song writing, music, dance and performance.

“HWL offers a great service supporting our patients and their families, particularly in the early days when things can be very overwhelming. They are able to offer advice and in particular help families with both emotional and practical needs. As a therapist it is so helpful to have their service to help support us in educating families and offering support when you can at times feel helpless as a clinician” – Natalie Marroney, Neuro Trauma Therapy Lead at St Mary’s Hospital

There’s more about their work here

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young people and yellow vandisadvantaged

GASP Motor Project

Helping train disadvantaged youngsters in motor mechanics

GASP Motor Project provides hands-on practical training in motor mechanics for disadvantaged youngsters – many may be excluded from education or face multiple challenges at home.

The Axis Foundation donated £10,000 to help GASP buy a van/mobile workshop, which enables them take their courses out to schools and youth organisations across Surrey.

“Thank you so much for this fantastic news.  We are so very excited about getting our new van. This will enable to help even more youngsters benefit from our training with GASP. They secure accredited AQA qualifications with us which they can use as evidence of commitment, hard work and an interest in motor mechanics. Many move on to local colleges, inspired by learning with us, knowing they can move forwards with their lives in a new direction and with a positive outlook. Thank you so much to everyone at the Axis Foundation”  –  Moyra Matravers, Fundraising and Business Development Manager

Case Study kindly provided by GASP
OG’s story

Having been excluded from mainstream school, OG was attending a Pupil Referral Unit. He had been involved with the police and felt rejected when he joined GASP, having a negative attitude and sense of failure. He said: “School doesn’t want me, I really like it here. They pushed me off to different places each week, but GASP is really good. I have learnt loads here. I really like making the metal toolbox.” Since joining GASP, OG has achieved a staggering seven AQAs.

More about GASP

GASP Motor Project provides hands-on practical training in motor mechanics for youngsters who are disadvantaged in multiple ways: referrals from the youth criminal justice system and school refusers or those who have been excluded from mainstream education as well as refugees, young carers, children living in the care system and many youngsters with special educational needs or living in challenging home circumstances. GASP is widely recognised in Surrey as a provider of non-judgmental, caring and practical support.

More here

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child playing with coloured balls in model boatDisability

Petts Wood Playgroup

Providing specialist tactile equipment for children with sensory issues

Petts Wood Playgroup for Children with Special Needs provides pre-school education for children with special needs from birth to five years.

The Axis Foundation donated £1,000 to purchase a sandpit and an alphabetical and numerical frieze: this interactive and tactile equipment will help children with sensory issues and those on the autistic spectrum or with a motor disorder.

“Oh wow, that is amazing news!  It is an amazing sum and will make such a difference to our children and the service we can provide. Thank you so much. We – and all the children who will benefit from using the sandpit and frieze –  are deeply grateful to the Axis Foundation” –  Larry Simpson, Manager

More about Petts Wood Playgroup for Children with Special Needs

Petts Wood Playgroup for Children with Special Needs provides care and education for children with clinical, emotional, developmental, social and additional needs aged from birth to five years. The special needs also include physical disabilities, developmental delay, behavioural and social problems that can cause difficulties for children and parents alike.

Attendance at the Playgroup is free. Their mini-bus picks up and drops off children to and from their homes in most local (Bromley, Kent) areas each morning. In addition to contributions and donations, support comes from Bromley Department of Education which provides services from an Educational Psychologist and Teachers from the Sensory Impairment Service.

More here

 

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Disability

Building for the Future

Contributing to music therapy for children and young people with disabilities

Building for the Future was founded in 2007 by a group of parents of disabled children. In 2014, they opened Our House, a specialist, accessible play centre where families can meet and disabled children can relax, have fun and be truly valued and accepted for who they are.

The Trustees of the Axis Foundation agreed to donate £460 towards starter packs (mainly to purchase musical instruments) for their new music therapy group.

“Thank you so so very very much for supporting us. The children and parents will be delighted with the new musical equipment. Results from our trial sessions were phenomenal. Not only have the children enjoyed the sessions but they have learned something new, were engaged and focused for the entire time and learnt to relax. The parents couldn’t believe the transformation.

“It’s a really tough climate out there at the moment and small charities like ours are struggling to provide services for the most needy members of our society. Due to the pandemic and the rising cost of living crisis our services are even more in demand than they ever were before and we are busier than we ever have been. The success of the music therapy group is an example of this demand and we are so pleased to be able to take what was a one-off session and offer it on a more permanent basis for our families” –  Jane Holmes, CEO

More about Our House/Building for the Future

Winner of the Queen’s Award for Voluntary Service, Our House offers a range of facilities, including soft play, a sensory room, teen chill-out zone, PCs, gaming and free play area as well as activities such as Saturday clubs, after school clubs, holiday activities, physiotherapy and a youth group.  Parents and carers find support, solace and strength from one another; siblings can make friends with other children in similar situations; carers and grandparents can chat over a cup of coffee. Our House today helps over 500 children and young people with disabilities.

There’s more here:

 

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Three people holding cheque from Axis Foundation for DemelzaNews

2023 – Annual Charity Golf Day

The Axis Foundation’s annual charity golf day raises funds for Demelza and the Axis Foundation.

This year (2023), our generous guests raised £26,000 which will go towards supporting Demelza as well as many small, local and impactful causes via the Axis Foundation.

Celebrities and supporters teed up at the prestigious London Golf Club, one of the country’s finest golf venues. The day saw various competitions held throughout the course including Longest Drive and Closest to the Pin.

Alan Curbishley, Foundation patron and tv sports pundit, has kindly lent his name to the annual golf day: the Alan Curbishley Classic. And, in addition to Alan, celebrities who attended included tv presenter Bradley Walsh, footballers Teddy Sheringham, Scott Minto and Dave Beasant, and many more from the world of sport and entertainment.

Thank you

We thank all of our guests and supporters including our sponsors for the day:

  • City Plumbing – Main sponsor
  • Howells Solutions – On-course refreshments sponsor
  • Bauer – Golf buggy sponsor

Rounding off the annual charity golf day, the Axis Foundation presented a cheque for £138,545 to Demelza ambassador Scott Minto, pictured here (l to r) with Bradley Walsh and Alan Curbishley.

 

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team of people with disability in powerchairsDisability

Farnham Powerchair Football Club (FPFC)

Helping people with disability enjoy the sport of powerchair football

Farnham Powerchair Football Club (FPFC) offers children and adults with physical disabilities the opportunity to experience team-based sport and play powerchair football. Many are often excluded from clubs – and even school-based PE – due to their physical disabilities and lack of specialist equipment.

The Axis Foundation donated £6,775 to buy the club a new power wheelchair for their squad. Up to now, the club has been borrowing wheelchairs: owning their own Powerchairs enables them to help a growing number of children and adults, disadvantaged by their disabilities, enjoy a team sport in a safe, inclusive environment

“Thank you so much for this, we are thrilled, this will make a real difference to the Club, especially when we enter the South East League season in September. We have already seen massive benefits with many of the players gaining confidence, enjoyment and improvements with their mental health through powerchair football. The new powerchair we can buy with your donation means more players progress their skills and confidence both within the club environment and at matches. Massive thanks once again!” –  Sue Barnley, Secretary

More about Farnham Powerchair Football Club

Farnham Powerchair Football Club, based in Waverley, Surrey has a squad of 10 players and attracts other family members as well as players from the surrounding counties and London, some travelling 50 mins to come and play each week.

There is more about their work here.

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two people at desk reading

The Adult Literacy Trust (ALT)

Helping adult learners become successful readers

The Adult Literacy Trust (ALT) believes that literacy is a right, not a privilege. Poor literacy can be a main contributor to a life of hardship, as a contributor to unemployment and inability to access benefits and services.

The Axis Foundation donated £4,766 towards ALT’s Reading Coaches programme which operates in the London Boroughs of Hackney and Southwark, recruiting and training volunteers who will help adult learners become successful readers.

“We at Adult Literacy Trust are delighted that our application for funding from the Axis Foundation has been approved. We have long admired the ethos and the approach of your grant-making and are honoured to be able to bring that to life through this very welcome grant.

“We rely entirely on the generosity of organisations such as the Axis Foundation to allow this to happen. Together, we are convinced we can make a huge difference to the life chances of so many.”  Robert Glick OBE, Chair

More about ALT

Poor literacy can be a main contributor to a life of hardship, as a contributor to unemployment and inability to access benefits and services. Conversely, improved reading skills bring profound and long-lasting improvements in employability, health and wellbeing and family and social interactions.

ALT’s Reading Coaches programme recruits and trains approximately 80 local volunteers who complement formal learning in (often overcrowded) classrooms by providing one-to-one support for 80-120 adult learners to gain the confidence to become successful readers.

They are currently working in the London boroughs of Hackney and Southwark (both boroughs have higher than UK and London averages for poverty) and plan to roll the Reading Coaches programme out across more London boroughs and also throughout the UK.

ALT partnered New City College and Mary Ward Centre to design and deliver the Reading Coaches programme. ALT’s work has been informed by experts, including from University College London, Workers’ Educational Association, and Learning & Work Institute.See more about ALT here

 

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man on red seats with Axis Foundatin branding Charlton AthletixCommunity

Charlton Athletic and the Axis Foundation

Helping partially-sighted Charlton fans enjoy the action!

The Axis Foundation recently donated £3,500 to the Charlton Athletic Supporters Trust to enable partially-sighted supporters to receive live commentaries at The Valley and thus fully immerse themselves in the action on the pitch.

The donation will help towards replacing old equipment so that partially-sighted fans can pick up a headset and receiver from reception and – from anywhere in the stadium – listen to the animated commentary by Rob Shaw (who pioneered the ground-breaking idea over 20 years ago), Harry Low, Jamie Whitehead and Dave Lockwood. They can capture and share the excitement of every moment!

The Axis Foundation has supported Charlton Athletic for many years now, most recently sponsoring Charlton Athletic Community Trust (CACT)’s 30th Anniversary Golf Day which raised over £13,000 to help support their work raising educational achievement, creating pathways to employment, building healthier lifestyles, bringing communities together and reducing crime.

Charlton close to our hearts

Indeed, Charlton is close to our hearts here at the Axis Foundation. The Chairman of our Trustees, Peter Varney, joined CAFC as managing director in 1997 – a dream job for Peter, who is, like his father, from boyhood, a proud supporter of the Addicks. Peter was promoted to the position of Charlton’s Chief Executive a year later. And Alan Curbishley, who famously managed Charlton 1991 to 2006, became patron of the Axis Foundation in 2014.

Our winning team of Alan and Peter saw the club through many successful years. And together they work tirelessly as volunteers for our Foundation whose primary aim is to support small, local and impactful causes. We are grateful to them both.

The Axis Foundation is very proud of our partnership with Charlton – and fans will be familiar with our branding at the Valley. In fact it is hard to miss!

Our photo shows our CEO and Axis Foundation Trustee John Hayes at the Valley.

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Four Men playing golf at Charity Golf DayNews

Celebrity Charity Golf Day – a favourite fixture

Our annual celebrity charity golf day raises funds for our charity partner Demelza as well as many small, local and impactful causes which the Axis Foundation supports.

Axis Foundation patron, sports pundit and former football manager  Alan Curbishley, kindly lent his name to this event: the Alan Curbishley Classic Charity Golf Day. Launched in 2017 at the prestigious London Golf Club, one of the country’s finest golf venues, the day has become a favourite fixture for our generous guests and supporters.

2023

At our fifth annual golf day, our generous guests raised £26,000. In addition to Axis Foundation Patron Alan Curbishley, celebrities who attended included tv presenter Bradley Walsh, footballers Teddy Sheringham, Scott Minto and Dave Beasant, and many more from the world of sport and entertainment.

Rounding off the 2023 golf day, the Axis Foundation presented a cheque for £138,545 to Demelza.

Full story here

2022

Our fourth annual golf day was a great cause for celebration. Our Foundation marked donating  £2m to 270 small, local and impactful causes in 13 years of giving. On the day, we presented Len Goodman, TV presenter, former Strictly Come Dancing judge and Demelza’s VP, accepted our cheque for £89,000.He said: ‘The Axis Foundation is a fantastic charity. You get Ten from Len!’

Full story here

2019

It its third year, 2019, the Axis Foundation Charity Golf Day raised £34,300. Our host for the day was our patron Alan Curbishley. Amongst the list of other famous attendees were stars from the sporting world, including former footballers Gus Poyet and Tim Sherwood.

On the day, we presented a cheque of £94,500 to Demelza.

The Axis Foundation had plenty to celebrate in 2019; hitting the milestone of a decade of donations to small, impactful and local causes.

Full story of our celebrations here

 

Group photo at Charity GOlf Day 2019
Thank you to everybody who attended and sponsored this year’s event: DM Jones, DMD, Excel, FFT, Gertsky Management, Howells, Martin Arnold, Russell Trew Ltd, Symphony, Your Image, Crystal Electronics Limited, Bauer Asbestos, Proactive Fire Solutions Ltd, PGM maintenance Ltd, DMD Group, Potter Raper, TW Drainage, Carringtons, Bulgaro.

2018

The 2018 Charity Golf Day raised £26,000. Celebrity attendees included famous footballers Chelsea legend Gianfranco Zola and England’s hero Sir Trevor Brooking. On this occasion, we presented Demelza with a cheque for £70,000.

Full story here

2017

In 2017, The Axis Foundation held its inaugural Charity Golf Day, raising over £18,000 for Demelza and Sparks Medical Research. Attendees included our patron Alan Curbishley and ex England manager Roy Hodgson, amongst other familiar sporting faces. In 2017, we presented a cheque of £53,724 to Demelza.

The fundraiser’s success created an appetite for the Charity Golf Day to become an annual occasion….

Full story here

 

 

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