New wetroom and bedroom will help Daisy’s independence – and support her family too
Daisy is a 6-year-old child with profound disabilities. At three months old, she was diagnosed with a rare genetic condition called KCNA1 which causes severe epilepsy, skeletal issues, global development delay and emotional issues. Additionally, she needs to be ventilated via a tracheostomy 24/7.
The Axis Foundation was delighted to contribute £2,223.45 towards creating a downstairs bedroom and wet room to help Daisy to live safely and with greater independence at home.
Thanking the Foundation her mother, Fiona, said: “Thank you so much for the good news!”
Explaining the difference a downstairs bedroom and wetroom will make for Daisy, Fiona continued:
“Daisy will be able to spend more time with her family instead of being confined to her upstairs bedroom where she needs humidified ventilation to make it easier for her to breathe when she is poorly.
“As Daisy is getting older it is making it harder to carry her up the stairs. We looked at installing a through floor lift but unfortunately Daisy’s bedroom is not big enough to allow this – and as she gets older she needs a bigger bed.
“We are extremely positive as a family and focus on the things we can do rather than the things we cannot do. Daisy’s story is a whirlwind from the day she became poorly to where we are at right now.”
The story continues
The Trustees of the Axis Foundation made a further donation in 2025 of £4,000 to contribute to the works, specifically for to provide a Soakaway and Block Paving, both required by Building Control.
“That is amazing – thank you from the bottom of our hearts for all of the support, you have helped so very much and we are so grateful”
The Axis Foundation is very proud of Spirit of Axis. She was launched in 2024 and joins the fleet of unique craft that have been specially adapted by DSA so that disabled people can experience the joys of sailing.
“We are very grateful to the Axis Foundation for their very generous grant, enabling us to build another innovative dinghy to replace and increase our fleet. Thanks to the generosity of charitable foundations like the Axis Foundation we have now funded seventeen new dinghies that cannot capsize or sink, due to their unique foam-filled hulls” – Mike Wood MBE, Chairman and Founder
More about Disabled Sailors Association
Unique in the sailing world the Disabled Sailors Association (DSA) helps disabled people enjoy the benefits of sailing in a unique fleet of specially-designed yachts and dinghies. 25 years of research and development have enabled them to innovate a state-of-the-art dinghy design, which caters for all disabilities and is equally appealing to able-bodied carers and family members.
Over 40,000 people have sailed the yachts since the charity was founded in 1993. So the DSA needs to replace craft to maintain safety compliance and increase their fleet so even more disabled people can enjoy the sport of sailing from Port Solent Marina Office, Lock Approach, Portsmouth.
Our donation of £5,000 to The Red Eagle Foundation helps buy both an electric wheelchair and all-terrain buggy for Arthur, a young boy with severe learning disabilities and complex health needs.
“It was such a joy to see Arthur’s face at the wheelchair assessment… his joy of being in control of moving when there is so much that he can’t control due to his health. The buggy will also help him get out and about in areas where the wheelchair is not suitable. It is going to have such a positive impact on the family” – Dominic Comins, CEO
More about Arthur
Arthur is a 12 year old boy. He is classed as a SWAN (‘syndromes without a name’) and despite a lifetime of procedures and tests, as his mother says, “what we don’t know is how my son’s condition will change as time goes on”.
Arthur’s physical and mental health are deteriorating and his mobility levels decreasing. He is cared for additionally by Demelza, the Axis Foundation’s charity partner.
The Trustees of the Axis Foundation were delighted to help Arthur by making his life more mobile with an electric wheelchair to increase his independence and accessibility at venues/events. For example, he loves going to Howletts Zoo to see the elephants; but the hill is a challenge in a manual wheelchair – particularly for his mother who has had two back operations.
More about The Red Eagle Foundation
The Red Eagle Foundation empowers disadvantaged children and grants wishes to children with life-limiting illnesses. There’s more about their work here
Headway West London helps brain injury survivors and their families, helping them reconnect with their local communities.
The Axis Foundation’s donation of £3783 will support their computer/ mobile contact work including one-to-one support, online workshops, educational support work and health talks.
“We are very grateful to all at the Axis Foundation for their kind donation. This will assist us in providing our linkworkers with the best possible infrastructure to carry out their work with our members as efficiently as possible, and therefore enable us to support as many people as possible. Thank you from us all” – Laura Murphy, Chair of Trustees
More about Headway West London
A brain injury can happen to anyone: through a fall, a road accident, a sporting incident, an assault, a tumour or haemorrhage. Acquired brain injury is often known as the hidden disability. Survivors are often lonely, isolated, bewildered and very distressed by the sudden and dramatic changes to their lives.
Affiliated with Headway – the brain injury association, Headway West London helps ensure vulnerable, isolated brain injured survivors do not fall through the net, supporting them through one-to-one sessions, targeted training pathways, return to work support as well as health and wellbeing sessions, in-person and online.
They work in the west London boroughs of Ealing, Hounslow, Hammersmith & Fulham, Kensington & Chelsea, and Westminster and have established close links with St Mary’s Hospital Paddington and Charing Cross hospitals, Hammersmith trauma clinics and Brain Odysseys, a performance arts intervention group designed with people living with brain injury to support recovery through song writing, music, dance and performance.
“HWL offers a great service supporting our patients and their families, particularly in the early days when things can be very overwhelming. They are able to offer advice and in particular help families with both emotional and practical needs. As a therapist it is so helpful to have their service to help support us in educating families and offering support when you can at times feel helpless as a clinician” – Natalie Marroney, Neuro Trauma Therapy Lead at St Mary’s Hospital
Helping MS sufferer write her book supporting other sufferers and their carers
Elma Gredelj, Axis Resident Liaison Officer, helped Anna, an MS sufferer, by applying to the Axis Foundation. As a result of Elma’s application, the Axis Foundation donated £300 and purchased a laptop for Anna so she can complete a book about her experiences of MS to help other sufferers and their carers too.
More about Elma’s application
Whilst conducting cyclical works on behalf of our client, Elma met Notting Hill Genesis resident, Anna. Anna wants to write a book to support others who suffer from MS. But as she was unable to access a laptop, Anna was writing it out by hand.
Elma tells the story of their friendship here:
“I met Anna whilst conducting window surveys for the Notting Hill Genesis contract. Once I got speaking with Anna it felt like we knew each other for years. I was very moved by her life story. She shared her positive and negative experiences of being a young lady with MS. She had so many goals that she wanted to accomplish but was very limited due to not having the facilities to do so. One of her main dreams was to write a book to raise awareness for MS. By having limited facilities to do this she has struggled to progress further in this.
“I felt like I couldn’t walk away from that property without trying to help this young lady and reward her for the confidence and strength she has shown to open up to me and share her heart-breaking experiences.
“I contacted the Axis Foundation and applied for a laptop for Anna to help her with her dream of writing a book. This was accepted and I felt so happy for her because I knew how much this would mean to her. I delivered the Laptop to Anna, and she was speechless and felt like ‘her dreams came true’.
“I want to advise anyone working with residents if you find that you can go that extra mile to help someone then please do apply through the Axis Foundation; the sense of reward it made me feel to help someone achieve their lifetime dream especially for such an important topic to raise awareness and knowing this will have an impact for many individuals, it was well worth it !
I wish Anna all the best: and want her to keep her head held high. She’s an inspiration.”
Chloe O Donnell witnessed the devastating effects of isolation and loss of mobility on local resident Ashley Clarke.
Chloe is a Site Manager at Axis Europe. She and her team were carrying out major repairs and maintenance works on the west London estate where Ashley lives: once she had seen Ashley’s plight, assessed the situation and established what would help Ashley most, Chloe applied to the Axis Foundation asking for help.
As a result of Chloe’s recommendations, the Axis Foundation bought Ashley a power-assisted wheelchair. Axis also fitted new automatic doors to accommodate the new chair.
Thanking the Foundation Chloe said: ‘“Ashley is obviously thrilled and has asked me to pass on his immeasurable gratitude to all involved in the process.”
More about our donation
Ashley Clarke is a severely disabled gentleman. He has severe arthritis in both hands, is paralyzed down his left side and has also had his left leg amputated.
Ashley’s carers place him in his wheelchair from his bed every morning, but his disabilities (he cannot use his hands) mean he can only move the wheelchair using his right foot. He has been housebound for three years, and spent most of that time stuck in one room.
As a result of an application by Chloe O Donnell, Axis Site Manager, the Axis Foundation donated a power-assisted wheel chair to Ashley. And we also fitted new automatic front door: at the press of a button or fob, the door opens so Ashley can easily manoeuvre himself and the chair in and out of his home.
Thanking the Foundation Chloe said: ‘“Ashley is obviously thrilled and has asked me to pass on his immeasurable gratitude to all involved in the process.
“Ashley has reiterated how life-changing this is: the new chair enables him to move freely around the house and go to the local park/shop/pub. It also means he can take himself to and from appointments at the local hospital which is a 10 minute ride away in on the new chair so he doesn’t have to wait (sometimes up to six hours) for an NHS car to take him home.
“He said he’d got so used to shuffling round using his leg to move his wheelchair that he hadn’t quite realised how difficult his life had become: having the power-assisted chair is just amazing and makes everything so easy.
“The first thing he wanted to do with his new found freedom was to treat his friend, who’s been helping care for him, to a Sunday lunch.
“I also wanted to say thank you again to the Axis Foundation for the opportunity to change someone’s life and I hope the case study on this encourages other members of staff to apply.”
Helping disabled people access the many benefits of cycling.
The charity enhances disabled people’s lives by ensuring that disabled people and their families and carers can access the physical, emotional, practical and social benefits of cycling.
The Axis Foundation has donated £2,952 to help Limited Edition Cycling Club purchase a second container to store their bikes and equipment. The new container will additionally help the charity expand their range of bikes. And so they can offer more sessions to another 50+ riders.
“The container has made all the difference to our club. It means that we can store the bikes safely and not damage them by having to pile them on top of each other. We have received funding for new trikes and bikes but were not able to buy them as the single container we were using was filled to capacity. Now we can add to our range of bikes and so offer a wider choice to our members. We can increase our membership as well as adding more enjoyment for everyone.
“This second container has also made a huge difference to the volunteers. It is easier and safer to unpack the bikes at the beginning of the session and then store them at the end. I truly believe that we may have lost volunteers if the loading and unloading had not become easier.
“So, having happy volunteers means the club will continue and we will be able to support a group of cyclists and their families that we all feel really committed to. It has made more of a difference that you can possibly imagine” – Nicky Jarrett, Co-ordinator
More about Limited Edition Cycling Club
Limited Edition Cycling Club runs a pool of specially adapted bikes, including recumbents, trikes, handcycles, wheelchair bikes and more so that disabled people can enjoy the joys of riding a bike. They also offer standard two-wheelers so members and their families and carers can enjoy riding together. Trained cycling coaches and volunteers support all riders.
Members enjoy safe riding sessions in a traffic-free environment at Sutcliffe Park, SE9 where there are also disabled toilets and a cafeteria. The charity is based in Eltham in south east London. More here
Our donation provides a wet room – plus privacy, dignity, independence and better quality of life for Brenda
As a consequence of Brenda’s major health issues, she is unable to bathe without assistance. Lifting her legs into the bath causes her too much pain. But thanks to the Foundation’s donation of £6,280, Brenda now has a wet room which will give her the privacy and independence she needs.
“I would like to thank everyone who was involved at Axis that has made this happen. You have made one very happy woman. This has meant so much to me and I appreciate all the hard work that has gone into making my wet room just so I can have a bit of dignity and independence brought back into my life. I would just like to thank Mark, Anthony and Matt for all of their hard work in making my wet room a reality. They have worked so hard to make my life so much easier. Thank you again from the bottom of my heart” – Brenda
Brenda’s Story
Two months following Brenda’s 50th Birthday in 2011 she fell ill with flu-like symptoms. Within a month she was unable to walk without the aid of a walking stick. Soon she had to use a walking frame, and her mobility continued to deteriorate so she was unable to leave the house alone or without the aid of a wheelchair/electric scooter. She couldn’t continue at her job in a pharmaceutical factory because walking aids are not allowed on the factory floor.
Brenda has been through years of rigorous tests. But sadly her condition continues to deteriorate with no official diagnosis. She now has limited movement in her body and is constantly in pain, taking multiple medications.
There is very little anyone can do to make Brenda’s condition any better at the moment. Bbut there are ways of improving her quality of life dramatically. We all take jumping in the shower for granted. But for Brenda, installing a new wet room, thanks to the Foundation, has given her some independence and most importantly restored her dignity and given her a better quality of life generally too.
Lorrae Mannering, Commercial Manager here at Axis, asked the Axis Foundation to help her aunt Brenda and we were delighted to support her application.
Helping disabled people enjoy benefits of Wheelchair Rugby
Our donation of £8,250 to London Wheelchair Rugby Club helps disabled people enjoy the benefits of wheelchair rugby. Through the sport, they gain motivation and self-belief, and realise they can achieve great successes. And that’s despite the odds.
‘’We are extremely grateful to The Axis Foundation for their support. This will enable us to purchase new wheelchair spares and tyres. We are delighted! A huge thank you from all the LWRC team.
“Our recent success at the Tokyo Paralympics demonstrates how vital our training sessions are, not just for our players who are an inspiration to all, but for the social element training sessions deliver. Training plays a vital part in our players’ lives. The physical and mental benefits cannot be overstated” – Steve Palmer, Chairman
More about our donations
The Axis Foundation donated £2,000 to LWRC in 2019 to help purchase training equipment and and put towards tournament fees. In 2021, the club asked for a further donation of £8,250 to help pay for wheelchair spare wheels and tyres. We were pleased to lend our support to their own fundraising once more.
More about London Wheelchair Rugby Club
Formed in 1989, LWRC has grown from very small beginnings. Members run the club – for members. Most of the players are on disability allowances only. LWRC aims to pay for their transport and training sessions. LWRC training sessions offer a lifeline to disabled people. They benefit from being part of a team and also from regular training to maintain their fitness levels and rehabilitation. This proved even more vital after months of isolation caused by Lockdowns during the Pandemic.
Find out more about London Wheelchair Rugby Club here
Supporting vulnerable and isolated people in Croydon
Disability Croydon‘s new community hub tackles isolation and loneliness and their long-term, detrimental effects on mental and physical health. And the Axis Foundation donated £7,440 to Disability Croydon to help them build an accessible toilet and drop-in café here.
“That is really wonderful news. Please pass on the appreciation of Disability Croydon to the Axis Foundation. This grant will make a huge difference. We intend that this hub will become the ‘go to place’ for people who are vulnerable, lonely and isolated of all ages and backgrounds” – James Kelleher, CEO
More about Axis in Croydon
The Axis Foundation’s parent company, Axis Europe, has worked for Croydon Council for many years, keeping residents’ homes safe and comfortable. In accordance with our Core Value 6 – A community we contribute to will welcome and value us – and in addition to our regular CI activities here, we are pleased to further support the Croydon community through our Foundation’s donation to Disability Croydon. The Axis Foundation is proud to be at “the heart of the community”.
More about the new hub
Disability Croydon’s new hub will deliver peer support /interactive group sessions, social activities including dance, music drama, book clubs, theatre and cinema visits and rambling and craft clubs. The hub will provide access to laptops and advice sessions including on debt and finance management and welfare benefits.
And there will be a wellness fitness centre supplying free exercise sessions for people with mental health needs as well as a drop-in centre and a café with fully accessible toilets. The 4-storey building is on Croydon High Street.
More about Disability Croydon
Disability Croydon offers information, advice, advocacy and support to disabled people and their families, on issues which affect their daily lives. Services currently include telephone befriending, digital buddies and training for the private and public sector on Diversity, Equality and Disability Awareness.
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