Care

Down Syndrome Cheshire

July 25, 2024By

Supporting therapy sessions to empower those with Down Syndrome

Down Syndrome Cheshire is dedicated to empowering individuals with Down syndrome, helping them unlock their potential and live the lives they choose.

The Axis Foundation donated £3,000 to Down Syndrome Cheshire to purchase sensory and musical equipment for babies, children and families to use during therapeutic sessions. Therapy sessions are designed to enhance social, communication and educational skills.

“This is wonderful news! Thank you so much from everyone here at Down Syndrome Cheshire. This will make such a big difference to our small, local charity as we can purchase more sensory and music equipment, allowing us to run more therapy sessions for our members, especially over the summer holidays.

“Developing strong communication skills is so important for our members. We are delighted to have been awarded this grant, as it will significantly benefit our families and their children, particularly in developing communication skills and having lots of fun!” – Julie Duff, Chair

More about Down Syndrome Cheshire

The charity was established in in 2007 by a group of local mothers who all had babies with DS. It has grown to directly support over 350 children and adults with DS and their families, as well as informing education and health professionals and the wider community. Visit their website here for more information

READ MORE
Disability

Creating Safe Garden for Young Man with Rare Disability

July 25, 2024By

 

Brenden has a very rare disability called Wolf-Hirschhorn syndrome characterised by delayed growth and development, intellectual and mobility disability, seizures and distinctive facial features. He needs 24/7 care

Brenden’s father desperately needed to create a safe outdoor space for his son. He wanted to level the whole garden and to create a large patio where Brenden could use his K-Walker and his wheelchair: a safe place for him to enjoy.

And this is where his landlord Peabody, Axis and the Axis Foundation in a true partnership were able to help! Peabody raised the alert to the family’s needs. Axis’ Nicola Barcoe, Partnering Manager, applied successfully to the Axis Foundation for support and personally undertook to oversee the works (value approximately £13,000).

The Axis team created a new patio of porcelain paving slabs (which are smoother and safer), levelling and adding astro turf to the remaining area. We put in a new fence, using funds contributed by Peabody while our sub-contractor M&R donated and fitted the shed, giving two additional days’ labour to the project with no charge. And our supplier Global Stones generously donated the paving slabs.

“It is unbelievable. This will really help Brendan with a better quality of life. We would like to thank Axis, the Axis Foundation and Peabody. They have been amazing” – Brendan’s parents

Peter Varney, Chairman of the Axis Foundation Trustees, said: “This project vividly represents what the Axis Foundation is all about and how it is a force for good. The Foundation believes in giving help where it is really needed, and where it can change a life. Here the Foundation has changed Brendan’s life.

“The partnership of Axis – operatives, supplier and subcontractor and the Foundation – with Peabody has created a space for this young man and his family to enjoy together now and in the future. We wish the family well.”

Nicola Barcoe said: “As well as Brenden’s other conditions he also suffers with social anxiety and doesn’t cope well in crowded surroundings which highlights the need for a usable open space which will be good for his mind, body and soul.

“It was a pleasure working with the Robinson family to create a new outside area for Brenden which will improve his  – and his family’s quality of life – and hopefully will give them years of enjoyment. I thoroughly enjoyed project managing these works through to completion and being the main point of contact for the family.

“I would like to thank the Axis Foundation for the funding and Peabody for funding fencing works, as well as  M&R and Global Stone who all helped give the family such an open and beautiful space.”

Elly Hoult, Chief Operating Officer at Peabody, said: “It’s incredible to see the results of Brenden’s garden transformation, and the big smile on his face. Now, this family can spend quality time together in a beautiful outdoor space. We believe that every resident deserves a safe and enjoyable home, and this initiative not only enhances Brenden’s quality of life, but also showcases Peabody’s commitment to supporting residents and fostering inclusive communities.”

READ MORE
little boy with fair hair in white tee shirtCare

Helping a Little Boy with Rare Genetic Disorder

January 31, 2024By

Donation buys a sensory room to help Toby, a little boy with rare genetic disorder

Six-year-old Toby Conway has an incredibly rare genetic disorder called De Novo ZNF 292 syndrome. It is so rare, his doctors and consultants have never previously encountered a patient with this diagnosis. And Toby’s parents are unable to find any other parents in a similar situation to share their experiences.

Toby has autistic traits, speech delay and extreme hyper mobility, His abnormal brain structure primarily affects his short-term memory (so he has some educational challenges). He is physically weak and has a high risk of epilepsy.

Despite all his challenges, Toby embraces mainstream education and loves his school. His parents told us:

“Every day, he runs into school with a huge smile on his face; it’s priceless. He is honestly the most polite, infectious and caring little boy. He is a pleasure to be around for both adults and other children. His school is amazing, and we’re hugely grateful for their support.”

The Axis Foundation Trustees awarded Toby’s school (Northgate Primary School Bishop’s Stortford, Hertfordshire) £10,000 to create a sensory room. This will not only help Toby’s sensory processing disorder but will also benefit the 100 neuro-diverse pupils at the school.

Thanking the Foundation, Toby’s father Mark Conway said: “This donation will make such a huge difference to Toby and all other pupils at his school, both neurodiverse and neurotypical. His school do an amazing job with limited resources, and their new sensory room will create a safe space for the kids that will be invaluable. Thank you so, so much.”

READ MORE
Demelza

Supporting our Charity Partner Demelza

December 4, 2023By

Everyone who works at Axis cherishes our Foundation and our charity partner Demelza

Indeed, there are literally no limits to what our people will do for the Axis Foundation and to ensure our charity partner, Demelza. continues to deliver extraordinary care to extraordinary children. Here are just a few examples: 

Top Row – We raised £800 in Children’s Hospice Week  * Collecting Demelza pots  * Getting Demelza’s garden summer-ready

Second Row  – Sorting donations at Demelza’s warehouse * Jake Thomas raised  £2,386 *   Miles in May raises £1,445

Third Row – Sarah Taylor raised £2,220 * Team Thames Path raised £2,255 * Team Tough Mudder raised £6,780

READ MORE
Care

Mollie’s story

August 2, 2023By

Helping care for a small child with Ataxia Telangiectasia (Louis-Bar syndrome)

Little Mollie has Ataxia Telangiectasia, a devastating, rare, inherited childhood neurological disorder. It affects the part of the brain that controls motor movement and speech.

The disease is also known as disease Louis-Bar syndrome. It is complex and additionally affects the lungs and immune system as well as causing sensitivity to radiation and increased risk of cancers.

It is also progressive and there is no cure. Decline starts increasing from age of five and little Mollie has recently turned six. It is most likely that is she will need a wheelchair by the age of 10.

Following an application from Joseph Hayes, Axis Business Development Manager, and moved by the plight of Mollie, the Trustees of the Axis Foundation agreed to a donation of £11,133. This will purchase her a Mollii suit (designed to relax muscles through neurostimulation), a Gallileo vibration board (to help with muscle tone) and also some specialist physiotherapy.

Emily Barker, Mollie’s mother, said: “Thank you so much for your email – we are over the moon that Mollie’s application was successful and so grateful she will now have access to a Mollii suit and Galileo board along with the specialist therapy.

“Our little girl deserves the best opportunities and chance in life so thank you so much for helping to make this happen – it really means the world to us.”

“We realise that right now without a treatment available the best options for Mollie are to support her strength and abilities with specialist therapies. We are therefore currently planning a Mollie’s Miracle Family Funday in August – this will be to raise money directly for Mollie to take part in extra therapies such as horse-riding therapies and hydrotherapy to ensure we are doing all we can to keep her muscles strong and help fight the symptoms of this devastating disease.”

Molllie’s parents run Mollies Miracle, with support of friends and family, raising funds to research into Ataxia Telangiectasia. More information here

You can donate to Mollie’s Just Giving page here

READ MORE
Group of people round table HeadwayDisability

Headway West London

July 31, 2023By

Supporting brain injury survivors

Headway West London helps brain injury survivors and their families, helping them reconnect with their local communities.

The Axis Foundation’s donation of £3783 will support their computer/ mobile contact work including one-to-one support, online workshops, educational support work and health talks.

“We are very grateful to all at the Axis Foundation for their kind donation. This will assist us in providing our linkworkers with the best possible infrastructure to carry out their work with our members as efficiently as possible, and therefore enable us to support as many people as possible. Thank you from us all” – Laura Murphy, Chair of Trustees

More about Headway West London

A brain injury can happen to anyone: through a fall, a road accident, a sporting incident, an assault, a tumour or haemorrhage. Acquired brain injury is often known as the hidden disability. Survivors are often lonely, isolated, bewildered and very distressed by the sudden and dramatic changes to their lives.

Affiliated with Headway – the brain injury association, Headway West London helps ensure vulnerable, isolated brain injured survivors do not fall through the net, supporting them through one-to-one sessions, targeted training pathways, return to work support as well as health and wellbeing sessions, in-person and online.

They work in the west London boroughs of Ealing, Hounslow, Hammersmith & Fulham, Kensington & Chelsea, and Westminster and have established close links with St Mary’s Hospital Paddington and Charing Cross hospitals, Hammersmith trauma clinics and Brain Odysseys, a performance arts intervention group designed with people living with brain injury to support recovery through song writing, music, dance and performance.

“HWL offers a great service supporting our patients and their families, particularly in the early days when things can be very overwhelming. They are able to offer advice and in particular help families with both emotional and practical needs. As a therapist it is so helpful to have their service to help support us in educating families and offering support when you can at times feel helpless as a clinician” – Natalie Marroney, Neuro Trauma Therapy Lead at St Mary’s Hospital

There’s more about their work here

READ MORE
Demelza

Climbing Kilimanjaro for Demelza

November 4, 2022By

Axis’ Walter Shave recently climbed Mount Kilimanjaro raising a fantastic £2,500 for Demelza and First Halesworth Scout Group.

The two-week expedition, which was completely self-funded by the team, took just over two weeks to complete and created memories to last a lifetime.

Located in Tanzania, Mount Kilimanjaro is the African continent’s highest peak at 5895m (19,340ft) and is the highest free-standing mountain above sea level worldwide.

The team started off by climbing up two smaller peaks nearby to acclimatise to the altitudes. And then it was time for the main event! The climb up Mt Kilimanjaro started after additional training in the rainforest.  Every day Wally and his team climbed a total of 1000m which is the equivalent of Mount Snowdon!

On the summit day, they woke up at 1am to reach the top just in time for sunrise. Wally reports: “We noticed that we were struggling a lot to physically move due to the lack of oxygen at that altitude, our average speed was 1.2km per hour! It was hard to believe that our oxygen levels went down to an astonishing 70%. When you are at sea level, if your oxygen levels go down to 92% you need to be rushed to A&E! The last 250m we walked through glaciers to reach the summit which were incredible: planes were flying below us! Once we reached the summit it was a feeling of such achievement and joy surrounded by amazing views and a beautiful sunrise, we will cherish that moment for our lifetime!”

For his scout group, First Halesworth Scout Group, the money raised will help fund an annual scout trip to Scotland or Switzerland for less fortunate members. For Demelza, the money will help to ensure every child and young person who has a serious or terminal condition receives the care and attention they need to live the most fulfilling life they can.

“Young people are our future! If I can make a small but meaningful contribution to both these fantastic organisations by giving up some of my time and sweat, then it’s a win win all round.”

Read more about our precious partnership with Demelza here.

And there’s more about how we helped First Halesworth Scouts here

READ MORE
Demelza

Precious Partnership with Demelza

July 8, 2022By

The Axis Foundation is proud of our precious partnership with Demelza Hospice for Sick Children. In our 13-year history, the Foundation has donated £707,000 to Demelza.

Our donation of £6,000 to Demelza was one of our Foundation’s very first donations. And when our Foundation’s donations reached an impressive total of £2m (July 2022) we were delighted to present Demelza with a cheque for £89,000 which marked our £2m Moment.

Like all good friends… we share some history

Our friendship with Demelza goes back nearly 20 years – all the way to 2004. We had formed a charity partnership even before the Foundation was born.

  • Our parent company Axis supported Demelza’s Bricks and Water appeal creating a Hydrotherapy Centre and two new bedrooms for teenage patients meanwhile refurbishing two existing bedrooms at their Sittingbourne hospice, Kent
  • Axis also contributed to building a new hospice in Eltham in south east London. Olympic champions and Demelza vice presidents Jayne Torvill and Robin Cousins opened the new premises in 2009. Celebrating the first anniversary of the Eltham hospice in 2010, our people joined Demelza supporters, nurses, children and their families at the ‘polka dot tea party’.

Like all good friends, we share some major triumphs

And yes, like all good friends we share great sadness too

When Liam and Amy Hayes’ son Benjamin Jeffrey John Hayes was born in 2019 and suffered brain damage during birth, the family took Benjamin to Demelza where, as Liam says:“They helped us make happy memories, even at the toughest time our family has ever been through.” You can read Benjamin’s story here.

We Axis people love Demelza

Axis people are in their element – snow, ice, water, air, mud – when we are fundraising for our charity partner Demelza. Tough Mudder challenges, cycling to Paris, swimming, boxing, flying, running, climbing in the Arctic, walking hundreds of miles, dancing, baking, eating (even not eating) – there’s no stopping us when it comes to raising funds for Demelza and the Axis Foundation. There’s more about our challenges here

Our clients, suppliers and subcontractors too have generously given at our golf days and charity ball to support both charities.The Axis Foundation’s Winter Appeal 2021 raised £75,000 for Demelza thanks to Axis people, our suppliers and subcontractors. And our 2021 Charity Ball raised a whopping £340,000 for the Axis Foundation’s small, local and impactful charities – including Demelza.

Map Matching

Foundation Funding Focus is mainly on the areas where our parent company Axis Europe works to make social housing properties safe and comfortable for residents: in London and the South East and Essex. Demelza offers hospice care in Kent and South East London, as well as helping families across the South East.

Money donated

All the money we raise goes into Demelza’s Adopt a Nurse programme, which brings a nurse full-time for one year. As well as visiting the children at the Hospice, the nurses also see their families at home to help with medication and physiotherapy as well as aid the parents in their time of need.

£100 buys nine hours of nursing care for a child with a life-limiting illness at Demelza.

READ MORE
Little boy in goggles using assistive technology to communicateDisability

 Lifelites

March 9, 2021By

Donation to Lifelites provides assistive technology for children with life-limiting illnesses

The Axis Foundation’s donation of £5,000 to Lifelites will buy assistive and inclusive for technologies to help children with life-limiting illnesses who attend Demelza Hospice Care for Children, the Axis Foundation’s charity partner.

“Lifelites is incredibly grateful for the support of the Axis Foundation. The Covid-19 pandemic has really highlighted life-limited and disabled children using hospice services as some of the most vulnerable and isolated in our society.

“With this donation from the Axis Foundation, Lifelites will be able to provide life-changing technology so children at Demelza  are able to communicate, play, engage with the world around them and control something for themselves” – CEO Simone Enefer-Doy

Case Study – JJ’s Story

Eyegaze is just one example of Lifelites’ assistive and inclusive technologies. Here’s a first-hand report of how it helped one little boy.

“Before JJ was diagnosed with ALD, he was an able young boy, attending a mainstream school. Once diagnosed he slowly lost the ability to walk and talk. The Eyegaze works really well for JJ as a form of play and interaction. He enjoys using all the apps within the Eyegaze, allowing him to create art, and make different patterns on the screen, just by moving his eyes. It is a great way to socially interact with him.

“JJ enjoys making drum beats on the Eyegaze. This is fantastic as he is able to do it on his own, encouraging his independence, when normally he needs assistance with everything. JJ used to love playing the drums before he became unwell.” – Charlotte, JJ’s care assistant

Our donation to Lifelites will help them procure, install and maintain assistive technology like Eyegaze at Demelza, helping life-limited children as well as their siblings, parents and other family members.

More about Lifelites

Lifelites consults, pilots, procures, installs and supports and maintains bespoke packages of assistive technologies for every children’s hospice service in the British Isles.

They train care staff in its use and application on an on-going basis to ensure the equipment is in constant use for the children for whom every second counts. Lifelites has 60 projects across the British Isles.

Using the power of assistive and inclusive technology Lifelites aims to give every life-limited and disabled child using hospice services the opportunity to play, to communicate effectively, to take part in creative activities and to choose and control things for themselves.

Assistive technology enables life-limited children to communicate and interact with their well siblings as other children, to engage meaningfully with parents and carers and to remain engaged with their world for as long as possible.

There’s more about Lifelites here

READ MORE
Axis CEO John Hayes handing over mini bus to Maypole charityDisability

The Maypole Project

September 5, 2020By

Support for parents of children with life-threatening illnesses

The long and happy relationship between The Maypole Project and the Axis Foundation dates back to 2016. Then the Foundation donated a minibus to this Bromley-based charity supporting the families of children with life-threatening illnesses.

Christened Mayble, the minibus transports over 500 children a year to different events and activities. Mayble also carries parents who lack transport to support groups, events and activities.

“Everyone at The Maypole Project was absolutely amazed and delighted to hear that we were successful in our bid to gain a minibus. It will make a huge impact on the services we can provide to children with life-threatening illnesses and their families – where transport is frequently a major block to access. We will also be able to develop activities and outings that we have, until this point, put on hold! A winning asset all round – thank you Axis!” – Sally Flatteau Taylor, Founder and CEO of Maypole

“I think it’s brilliant. So many of us struggle just with the day-to-day and to get to a place is difficult. It will be great to get on the minibus and support the child there rather than have the child in the back of a small car, trying to take their seat belt off” – Maypole parent Ros Luff

“We would like to say a massive THANK YOU to the team at Axis for donating our wonderful minibus, Mayble. The Maypole Project organises lots of wonderful outings in their minibus which enable my child with special needs to be alongside their siblings … we think it’s absolutely amazing. Thank you to the team at Axis for donating Mayble, we would be lost without The Maypole Project’s support” Maypole parent

2017: Funding toys and equipment

The Axis Foundation made a further donation (£9,000, 2017) which helped purchase sensory toys and a wheelchair lift.

Sally Flatteau Taylor said: “Those who are chronically ill get great joy out of playing with sensory toys. The wheelchair lift gives direct and easy access to the family support room and the toilet which has been incredibly helpful for the children and their families. It has helped us support so many more children. It gives the children better access inside and outside of the building. The support from the Axis Foundation is amazing  is phenomenal for our charity. We really do appreciate it. It’s been really good to have the Axis Foundation’s support and belief in the work that we do.”

2018: Building a Sensory Barn for Maypole

In 2018 Axis Apprentices created a Sensory Barn in Maypole’s garden. This enabled all Maypole children to play safely in a stimulating and interactive room. It had long been on the wish list at Maypole and Axis was happy to help out. The full story of the Sensory Barn with pictures and video is here!

2019/ 2020: More support for Maypole

In 2019, the Axis Foundation made a further donation of £1,500 to help Maypole with their drumming workshops, which due to COVID-19 became online activities in 2020. A further donation of £5,000 in 2020 purchased more soft toys for the sensory cabin (built by Axis) and supported taking families on outings.

Maypole families said:

“Thanks so much again for accommodating us, it was such a lovely space for the kids. We had great fun and a great break.”

“We came to the horse-grooming/walking activity in Tonbridge and my child thoroughly enjoyed it. The peaceful setting, the one-to-one careful attention he received all helped to make it so memorable and enjoyable for him.”

“Thank you so much for the outing – we had great fun this morning.”

2021: Bespoke play boxes

The Axis Foundation funded 40 play boxes tailored to an individual disabled child’s needs with a donation of £1500 (2021). The Maypole Project recruited a play therapist to work face to face with the children (some of this online) during the Pandemic.

2022: Sensory play equipment

The Axis Foundation donated £6,866 towards sensory equipment, children’s t-shirts, and team sweatshirts. The sensory equipment includes floor mats, wall toys, fibre optic sparkle rugs, liquid floor tiles and light up toys.

“We are so truly appreciative of this generous award from the Axis Foundation to The Maypole Project – and of course all of the support – both financial and practical through the apprentices work in our buildings – you and your team have given us over the years that it’s hard to find the words” – Sally Flatteau Taylor, Founder and CEO of Maypole

2024: Specialist equipment

The Trustees agreed to support Maypole once again with a donation of £6,750 to purchase postural chairs, adjustable tables and iPads.

Total donations to Maypole

Our donations to Maypole Project, supporting families of children with life-threatening illnesses, came to £72,750 in 2024.

Here is what Sally Flatteau Taylor said to us in 2021:

We can’t thank you enough for the wonderful donations you have provided us across the years. They are all in constant use:
Minibus – used in lockdown to make visits to families and in full use every day during the summer holidays when we had had our fullest programme of outings and excitement yet  including visits to the beach, riding, sailing, bowling, climbing and even to a shopping centre
Stairlift for back office – well in use: as the pandemic lifted we found families were desperately in need of new spaces, new activities, new toys and sensations for the children so we turned the back office into a soft and sensory play space initially used by one family alone (cleaned between sessions by one of our team) and now more families can meet there.
Garden – in full use, as it was when your team wonderfully transformed it!
Sensory Cabin – we have added much sensory equipment in there to make it a play therapy centre for children, and a quiet and calming space for adults
Play Therapy and Play Boxes: The children LOVE THEM and they are a definite and permanent feature of our work.

There’s more about Maypole here

READ MORE