disability

Bringing stories vividly to life for children with cerebral palsy

Dame Vera Lynn Children’s Charity supports children with cerebral palsy, chromosome abnormalities and rare genetic disorders that cause physical impairment.

The Trustees of the Axis Foundation were delighted to make a donation of £500 so the charity could purchase Bag Books. These contain a short story and physical props with which children interact, bringing the whole story to life and making it a much more sensory and powerful experience for them.

“Traditional storybooks are not accessible to children with Profound and Multiple Learning Difficulties (PMLD). So, I want to thank you the Trustees of the Axis Foundation for your kind decision to fund Bag Books for our children. This really will make the world of difference to the children we support, allowing them to enjoy story time in their sessions” – Glenys Creese, CEO

More about Dame Vera Lynn Children’s Charity

Dame Vera Lynn Children’s Charity helps children under five years with cerebral palsy and other motor learning impairments make the best possible start in life – giving the children as much independence as possible and giving families the support and skills to continue their development at home.

Many of their children have additional needs such as visual and hearing impairments, speech and language difficulties and issues with eating, drinking, and respiration. Some may be life-limited and all have conditions that affect the development of their cognitive, communication, and social skills.

There’s more here 

Photo: ‘The Little Seed’ Bag Book has many interactive elements for children, including smells and things to touch

Donation buys therapeutic exercise trainer for young boy confined to wheelchair

Just before he reached 10, Jude Keil was a normal active and growing young boy. He was an excellent cyclist and swimmer, regularly completing 10 miles off roading with his Dad and could happily snorkel for hours, chasing fish in the sea.

But in July 2022 his parents, Emma and Peter, noticed Jude was experiencing a shortness of breath. More complications followed and in February 2023, eventually his nervous system broke down and prevented him from breathing, moving or talking on his own.

After 11 months at The Evelina London Children’s Hospital, Jude is now confined to a wheelchair, reliant on a tracheostomy and a ventilator to breathe. He communicates by eye movements. His condition still has no name, and it may well be that he is the world’s only sufferer. The closest the medical profession can come to diagnosis is that it an unknown type of motor polyneuropathy.

Emma and Peter reached out to the Axis Foundation for help – and our Trustees were delighted to make a donation of £3,600 to enable them to purchase a therapeutic MotoMed Loop exercise bike for Jude.

Peter told our Trustees: “Thank you so much. This is fantastic news, not only for Jude but for us as a family. Jude always has been a great cyclist and in The Evelina hospital he was able to use a MotoMed machine so well. With this machine we will be able to ‘ride’ again together, albeit indoors or in the garden (when it finally gets warmer!).

“In the last 2 years we have seen and learnt so much. We have learnt that having the right tools for recovery is not only vital but so expensive.

“The likelihood of Jude having a full recovery is unknown due to the rarity of his condition. But we are determined to make sure he lives, rather than exists. He is now showing signs of nerve triggering to his muscles and requires complex and detailed physiotherapy.

With his current response to basic physiotherapy we believe that equipment such as the MotoMed would enable a significant muscle engagement. This will give Jude the chance to perhaps even stand or walk again! We are so grateful Jude has been selected for this award.”

You can find out more and support Jude directly here

Bringing the benefits of riding to more people with disability

Park Lane Stables is an award-winning Riding for the Disabled Association (RDA) centre enriching the lives of children and adults with disabilities or learning difficulties.

The Axis Foundation donated £2,754 to purchase two specialist saddles so that more people can reap the undeniable benefits of riding with the team at Park Lane Stables.

“Thank you so much for approving a grant for our charity. We are incredibly grateful. The grant will enable us to provide group sessions for those with the most complex needs.

“At present, we only have one specialist saddle, so we have to take the most complex people one at a time. Your grant will enable to increase participation. We also remember that the saddle also provides comfort for the horse which is just as important part of the partnership” – Natalie O’Rourke (Manager)

More about Park Lane Stables

Park Lane Stables operates over 6,000 individual riding sessions for young people with disabilities every year. Activities include assisted riding, horse care, carriage driving, equine therapy and hippotherapy.

The benefits, as the parents of young riders report, include improvements to physical/core strength; social and communication skills; mental health and wellbeing; behaviour and relationships and confidence and resilience.

The majority of staff here are registered as disabled and most have been previous clients of the charity, now finding meaningful employment within the centre.

Here’s more about the charity which is based in Richmond, Surrey.

New specialist hoist supports those with disability

After her daughter Ruby was born and diagnosed with a rare chromosome disorder, Alison Parr identified a gap in support for children with Special Educational Needs and Disabilities (SEND) and their families. So, she founded Ruby’s Fund. And now, this award-winning charity supports 2,000 families (including children and carers) each year in Cheshire East.

The Trustees of the Axis Foundation, recognising the excellent work of the charity, awarded Ruby’s Fund £4964.79 to cover the purchase and installation costs of a new tracking hoist in the disabled toilet at their centre.

“I was delighted to hear we have been awarded the grant to allow us to fit a hoist in our disabled bathroom. It will make such a difference to the families who require specialist support, such as hoisting, and we will proudly show them the hoist when it is installed. On behalf of Ruby’s Fund, the staff, volunteers and the families we support, thank you. We appreciate your generosity and kindness” –  Alison Parr, Founder, Operations and Impact Manager – and Ruby’s mum

More about Ruby’s Fund

Ruby’s Fund’s overall aim is to provide early help for families of young children with SEND to ensure they stay well and avoid reaching crisis point: to help them thrive, be happy and feel part of a bigger family. High quality facilities at Ruby’s Fund centre include a café, a sensory room with hoist, soft play area, siblings’ play room, a sensory garden and changing room with hoist. The centre benefited 6,000 visitors in 2023.

They also offer outreach sessions at partner venues and onboard their mobile sensory bus. The dedicated team offers person-centred support to disadvantaged and vulnerable children and families; improving their quality of life and wellbeing.

Feedback highlights

• 95% of parents said Ruby’s Fund has improved their overall sense of wellbeing
• 100% of parents felt ‘listened to’ by Ruby’s staff
• 66% of parents felt Ruby’s Fund support had prevented them seeking crisis support from their GP
• 93% of parents felt better informed on how to be a good parent carer
• 100% of parents would recommend Ruby’s  Fund support services to other parent carers.

There’s more about their work here