Disability

Helping Disabilities Trust

December 12, 2024By

Home therapy for children with disability

Helping Disabilities Trust supplies – free of charge – toys and specialist equipment to disabled children

The Axis Foundation was delighted to award the London charity with £5,000 to buy specialist equipment, namely a waterbed, a weighted blanket, a sensory ball pool, a sensory bubble tube, a resonance rocker, a dream drum and a kinetic wonder wall.

“This picture shows your sensory bubble tube in usage by a girl suffering from autism. The family is very grateful to you for granting us the funding to purchase this. Although they can’t thank you enough, they will be grateful forever for the calm and serenity that you have brought into their lives.

“Helping Disabilities Trust is delighted and enormously grateful to the Trustees of the Axis Foundation for providing us with a donation of £5,000. On behalf of Helping Disabilities, I would like to thank you and all those involved in the Axis Foundation for partnering with us to improve the lives of disabled children” – Moishe Bodner, Chair

More about Helping Disabilities Trust

Helping Disabilities Trust’s “Equipped and Enabled” project supplies – on loan completely free of charge – specialist equipment to 100 disabled children and their families. This makes home therapy a reality, improves life skills and enables children to reach their full potential minus the costs.

There’s more about Helping Disabilities Trust here 

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Disability

Camp Jojo

December 12, 2024By

Camping freedom for children with disability

Camp Jojo helps children with complex needs and disabilities – many have life limiting conditions or reduced life expectancy – to enjoy a totally accessible, family-centred camping experience

The Axis Foundation was delighted to donate £5800 to Camp Jojo so they could buy two Alaska Size 1 tents.

With these specialist tents, Essex-based Camp Jojo can safely accommodate children with the most complex needs who need hoisting for moving and handling, and their families.

“At Camp Jojo, our motto is ‘everyone can’. Our visitors realise their potential through experiences they may have never previously thought possible. I can’t thank the Axis Foundation and your Trustees enough – you’ve made my weekend! This will mean so much to our families” – Helen Davies, Camp Jojo Fundraiser

Camp Jojo Patron Sally Philips (Alan Partridge, Bridget Jones, Smack the Pony, Green Wing, and Miranda) says: “Going on holiday with children who have additional needs is a challenge at the best of times. How wonderful it is that Camp Jojo has made it possible for families of children with complex needs to get away and enjoy a traditional, family,camping holiday singing around the campfire, sleeping in tents, getting muddy, toasting marshmallows and eating baked beans.”

There’s more about Camp Jojo here

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Disability

Red Eagle Foundation – Layla

December 12, 2024By

Mobility and independence for child with rare genetic condition

Our donation to Red Eagle Foundation helps buy a specialist walker for Lyla

Lyla Treeby is two years and has a rare genetic condition which affects her muscle tone in all four limbs and trunk. She is impaired visually and unable to sit or roll by herself.

Layla enjoys movements and is keen to explore, using her arms and legs when supported. Red Eagle want her to enjoy these movements in a safe way. And so they trialled her in a supportive walker called My Way from Leckey. This walker supported her well in her trunk and allowed her to use her legs better for moving around with assistance.

The Axis Foundation was delighted to support Red Eagle’s application with a donation of £2910 to the Red Eagle Foundation to help buy a Lecky My Way walker for Lyla.

“This is a fantastic piece of equipment for Layla as she can explore her space in a safe way and overcome her motor and visual disability. Lyla’s parents and I are very grateful to the Axis Foundation for their support. This equipment will be well used at home giving Lyla the independence to move around without being held all the time” – Dominic Comins, CEO

More about The Red Eagle Foundation

The Red Eagle Foundation empowers disadvantaged children and grants wishes to children with life-limiting illnesses. The Axis Foundation has previously supported Red Eagle Foundation and helped to buy an electric wheelchair and all-terrain buggy for Arthur, a young boy with severe learning disabilities and complex health needs.

There’s more about their work here 

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Disability

The Abbey School

July 25, 2024By

17-seater minibus makes trips and treats accessible for wheelchair users

The Abbey School is a strong and vibrant special school with places for students who have learning difficulties and additional needs. The school also welcomes children with physical disabilities – and now has 12 wheelchair users.

The Axis Foundation donated £10,000 to help the charity (The Abbey School Farnham Trust) purchase a 17-seater wheelchair-accessible minibus so that Abbey School pupils can go swimming, to the gym, to local nature reserves and on summer school trips.

“On behalf of all the pupils and staff at The Abbey School thank you for the pledge of £10,000 towards our new minibus. We are really grateful to you all for deciding to help us with this very generous offer.

“A wheelchair-accessible bus will make activities available to all our pupils regardless of their disability and will help increase their independence as they grow older and leave Abbey for further education, supported employment or work experience” –  David Jackson, Head Teacher

There’s more about Surrey-based Abbey School here

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Disability

Park Lane Stables

July 25, 2024By

Bringing the benefits of riding to more people with disability

Park Lane Stables is an award-winning Riding for the Disabled Association (RDA) centre enriching the lives of children and adults with disabilities or learning difficulties.

The Axis Foundation donated £2,754 to purchase two specialist saddles so that more people can reap the undeniable benefits of riding with the team at Park Lane Stables.

“Thank you so much for approving a grant for our charity. We are incredibly grateful. The grant will enable us to provide group sessions for those with the most complex needs.

“At present, we only have one specialist saddle, so we have to take the most complex people one at a time. Your grant will enable to increase participation. We also remember that the saddle also provides comfort for the horse which is just as important part of the partnership” – Natalie O’Rourke (Manager)

More about Park Lane Stables

Park Lane Stables operates over 6,000 individual riding sessions for young people with disabilities every year. Activities include assisted riding, horse care, carriage driving, equine therapy and hippotherapy.

The benefits, as the parents of young riders report, include improvements to physical/core strength; social and communication skills; mental health and wellbeing; behaviour and relationships and confidence and resilience.

The majority of staff here are registered as disabled and most have been previous clients of the charity, now finding meaningful employment within the centre.

Here’s more about the charity which is based in Richmond, Surrey.

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Disability

Greengrow

July 25, 2024By

Accessible toilet for visitors with disability

Greengrow is a not-for profit, ecologically-run farm which produces food boxes for local households and grows food for a local food bank. They also offer enriching educational countryside experiences for urban children.

The charity was seeking funding for an accessible composting toilet for visitors with disability – and the Axis Foundation donated £5,000 to help them.

“We can’t thank you enough, this has made our week; it will make a huge difference to our organisation.This funding will allow us to reach out to more people who will benefit from our beautiful farm. It will be a real legacy project that will form part of our Care Farm hub.

“Thank you again so very much!” – Rozelle Bettesworth (Director)

Greengrow Farm currently has one composting toilet but it is not accessible for individuals with additional needs. The new accessible toilet for visitors with disability brings Greengrow a wider gain: Greengrow can offer more day placements for adults with learning disabilities and expand their offerings to schools so more visitors and come and learn about farming and growing food.

There’s more about Greengrow, a beautiful 34-acre mixed farm in the Waveney Valley, here

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Disability

Ruby’s Fund

July 25, 2024By

New specialist hoist supports those with disability

After her daughter Ruby was born and diagnosed with a rare chromosome disorder, Alison Parr identified a gap in support for children with Special Educational Needs and Disabilities (SEND) and their families. So, she founded Ruby’s Fund. And now, this award-winning charity supports 2,000 families (including children and carers) each year in Cheshire East.

The Trustees of the Axis Foundation, recognising the excellent work of the charity, awarded Ruby’s Fund £4964.79 to cover the purchase and installation costs of a new tracking hoist in the disabled toilet at their centre.

“I was delighted to hear we have been awarded the grant to allow us to fit a hoist in our disabled bathroom. It will make such a difference to the families who require specialist support, such as hoisting, and we will proudly show them the hoist when it is installed. On behalf of Ruby’s Fund, the staff, volunteers and the families we support, thank you. We appreciate your generosity and kindness” –  Alison Parr, Founder, Operations and Impact Manager – and Ruby’s mum

More about Ruby’s Fund

Ruby’s Fund’s overall aim is to provide early help for families of young children with SEND to ensure they stay well and avoid reaching crisis point: to help them thrive, be happy and feel part of a bigger family. High quality facilities at Ruby’s Fund centre include a café, a sensory room with hoist, soft play area, siblings’ play room, a sensory garden and changing room with hoist. The centre benefited 6,000 visitors in 2023.

They also offer outreach sessions at partner venues and onboard their mobile sensory bus. The dedicated team offers person-centred support to disadvantaged and vulnerable children and families; improving their quality of life and wellbeing.

Feedback highlights

• 95% of parents said Ruby’s Fund has improved their overall sense of wellbeing
• 100% of parents felt ‘listened to’ by Ruby’s staff
• 66% of parents felt Ruby’s Fund support had prevented them seeking crisis support from their GP
• 93% of parents felt better informed on how to be a good parent carer
• 100% of parents would recommend Ruby’s  Fund support services to other parent carers.

There’s more about their work here

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Disability

Creating Safe Garden for Young Man with Rare Disability

July 25, 2024By

 

Brenden has a very rare disability called Wolf-Hirschhorn syndrome characterised by delayed growth and development, intellectual and mobility disability, seizures and distinctive facial features. He needs 24/7 care

Brenden’s father desperately needed to create a safe outdoor space for his son. He wanted to level the whole garden and to create a large patio where Brenden could use his K-Walker and his wheelchair: a safe place for him to enjoy.

And this is where his landlord Peabody, Axis and the Axis Foundation in a true partnership were able to help! Peabody raised the alert to the family’s needs. Axis’ Nicola Barcoe, Partnering Manager, applied successfully to the Axis Foundation for support and personally undertook to oversee the works (value approximately £13,000).

The Axis team created a new patio of porcelain paving slabs (which are smoother and safer), levelling and adding astro turf to the remaining area. We put in a new fence, using funds contributed by Peabody while our sub-contractor M&R donated and fitted the shed, giving two additional days’ labour to the project with no charge. And our supplier Global Stones generously donated the paving slabs.

“It is unbelievable. This will really help Brendan with a better quality of life. We would like to thank Axis, the Axis Foundation and Peabody. They have been amazing” – Brendan’s parents

Peter Varney, Chairman of the Axis Foundation Trustees, said: “This project vividly represents what the Axis Foundation is all about and how it is a force for good. The Foundation believes in giving help where it is really needed, and where it can change a life. Here the Foundation has changed Brendan’s life.

“The partnership of Axis – operatives, supplier and subcontractor and the Foundation – with Peabody has created a space for this young man and his family to enjoy together now and in the future. We wish the family well.”

Nicola Barcoe said: “As well as Brenden’s other conditions he also suffers with social anxiety and doesn’t cope well in crowded surroundings which highlights the need for a usable open space which will be good for his mind, body and soul.

“It was a pleasure working with the Robinson family to create a new outside area for Brenden which will improve his  – and his family’s quality of life – and hopefully will give them years of enjoyment. I thoroughly enjoyed project managing these works through to completion and being the main point of contact for the family.

“I would like to thank the Axis Foundation for the funding and Peabody for funding fencing works, as well as  M&R and Global Stone who all helped give the family such an open and beautiful space.”

Elly Hoult, Chief Operating Officer at Peabody, said: “It’s incredible to see the results of Brenden’s garden transformation, and the big smile on his face. Now, this family can spend quality time together in a beautiful outdoor space. We believe that every resident deserves a safe and enjoyable home, and this initiative not only enhances Brenden’s quality of life, but also showcases Peabody’s commitment to supporting residents and fostering inclusive communities.”

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Disability

Help for Daisy and her Family

June 12, 2024By

New wetroom and bedroom will help Daisy’s independence –  and support her family too

Daisy is a 6-year-old child with profound disabilities. At three months old, she was diagnosed with a rare genetic condition called KCNA1 which causes severe epilepsy, skeletal issues, global development delay and emotional issues. Additionally, she needs to be ventilated via a tracheostomy 24/7.

The Axis Foundation was delighted to contribute £2,223.45 towards creating a downstairs bedroom and wet room to help Daisy to live safely and with greater independence at home.

Thanking the Foundation her mother, Fiona, said: “Thank you so much for the good news!”

Explaining the difference a downstairs bedroom and wetroom will make for Daisy, Fiona continued: “Daisy will be able to spend more time with her family instead of being confined to her upstairs bedroom where she needs humidified ventilation to make it easier for her to breathe when she is poorly.

“As Daisy is getting older it is making it harder to carry her up the stairs. We looked at installing a through floor lift but unfortunately Daisy’s bedroom is not big enough to allow this – and as she gets older she needs a bigger bed.

“We are extremely positive as a family and focus on the things we can do rather than the things we cannot do. Daisy’s story is a whirlwind from the day she became poorly to where we are at right now.”

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Two small children Kaiden Burman and Marla BurmanDisability

New bed for little Kaiden

June 10, 2024By

Helping little boy with Dravet Syndrome – and his family

Axis’ Fleet Manager Taylor Burman applied to the Axis Foundation to acquire a specialist cot bed for his son Kaiden who suffers with Dravet Syndrome, a very rare and complex form of epilepsy.

Taylor told us: “We are always looking for ways on how keep Kaiden safe. He only sleeps about three hours a day and can be up all night. He needs monitoring systems constantly overnight. When we are at Demelza, he uses a specialist bed. It is electrically operated and has perspex panels and padding and is really great for him. So, I applied to the Foundation for help to buy something similar.”

The Trustees of the Axis Foundation were completely unanimous in their decision to support Taylor and his family and have made a donation of £11,000 to buy the bed.

Thanking the Foundation, Taylor said: “From the very day I started with Axis just under three years ago now, I’ve been supported by such a fantastic company. Axis is a company you want to stay with, there are no other companies like Axis, Axis is like a family, The Axis Family.

Taylor told us: “It was only two years ago, Kaiden caught Covid from hospital, at just one of his many visits, and due to his condition, we nearly lost him. It was extremely touch and go and unfortunately he had to be medically induced into coma. I remember ringing my manager at the time, David Crampton, and broke down in tears on the phone.

“The words and support I received from the board of directors, managers, colleagues and operatives were amazing. It was a tough time, but strangely that support helped us, helped Kaiden.

“I was later introduced to the Axis Foundation, constantly being told by [Foundation Founder, Axis CEO] John Hayes: ‘Taylor, the Foundation is your Foundation, use it.’

“I had always turned it down: my reasoning was, Axis does enough for me, and I wasn’t sure there is anything that could help Kaiden. I was WRONG!

“Kaiden started going to Demelza in Sittingbourne last year. We were extremely anxious about leaving him over night. He has no sense of danger at all. Our hospital consultants explained it like this: ‘If you put an item in fire, a normal person would keep away from the fire, but Kaiden would walk into the fire and sit in the fire to play with that item.’

“And because he also has epileptic seizures, it just wasn’t safe to have him in a normal bed. Demelza had a purpose-built specialist bed just for him, for children like him, something we have not seen or heard of. So I enquired with Demelza about the bed, the safety of the bed and most importantly, does Kaiden like it (he does!).

“When we were in the process of moving home, our wonderful [Foundation Trustee/Axis Divisional Finance Controller] Claire Pearce reached out to me asking if there is ANYTHING the Foundation could do for my family. The rest is history.

“My family and I would just like to thank the Foundation their support in providing the bed, it has taken a humongous amount of pressure off me and my wife. It’s very hard to put in words how thankful we are. Thank you!”

More about Kaiden

Kaiden, suffers with a disability called Dravet Syndrome, which is a rare and complex form of epilepsy. He requires 24/7 care at home and school and needs regular assistance at our charity partner Demelza’s hospice in Sittingbourne. Demelza’s home care team provide respite for the family too. including his sister Marla.

Because of related co-morbidities (including autism, mobility and sleep issues, low immunity and oxygen levels) and vulnerability to SUDEP (sudden unexplained death in epilepsy) Kaiden is also treated frequently at specialist hospitals including Evelina and Great Ormond Street as well as the family’s local hospital, Medway in Kent.

Up till now, he has slept in his parents’ room along  with all his vital equipment including Oxygen machine and bottles, medication, and seizure and oxygen monitoring systems.

As Kaiden, now five, grows and gets heavier it is increasingly hard to lift and carry him so the local council are re-homing the family to a larger home with hoists and lifts – and where he will have a room of his own.

And, thanks to the Axis Foundation, he now has a practical, safe cot too.

 

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